http://gama.ldptech.com
Every thing about this can be changed, including name.
What we need...
1. Content
2. Placement of content
3. Logo
Nish.
Tuesday, September 30, 2008
Fundraising this weekend
HI. I have the opportunity to do a little fundraising this weekend. My town is having a fall fest with music on the town square and food, etc. This is the first time for this event and I just found out about it on Sunday. I contacted the people in charge and got a booth to sell jewelry (I make it for fun). After explaining we are trying to get a local group going here and raise some $$$, they let me have a booth for free. I will be crazy busy making jewelry the rest of the week--keep me in your thoughts and prayers. I don't expect to make millions---this is a very small town and the first time this event has happened, so I'm not sure what to expect. However, even a few hundred dollars is better than no dollars. I will post some pictures after the event----maybe it will inspire you to use whatever talents you have as a way to make some $$$ for our cause????
Denise
Denise
Saturday, September 27, 2008
Vote for a Name
We have discussed a few names. Can we please take a vote. If you have another name to add to the list, please post it to this blog. I will collect the votes on Wed.---October 1. I would like to come up with a brochure and a letter to docs. and dept. of health to let people know we are here. We need a name (and a website) to get that done. So...............here's what we have so far:
Midwest Galactosemia Group
Galactosemia Association of the Midwest (GAM)
Galactosemia Group of the Midwest
PGC-Midwest (still waiting to hear from PGC to see if this is even possible)
Midwest Galactosemia Group
Galactosemia Association of the Midwest (GAM)
Galactosemia Group of the Midwest
PGC-Midwest (still waiting to hear from PGC to see if this is even possible)
Friday, September 26, 2008
baby food
I am going to use this blog to start getting good info from all of you. With Shyla slowly approaching the magic month for solids I am looking for any resources you might have. I plan on making a lot of her food. We did with Kaya. Denise gave me a few suggestions for baby food "cookbooks". Just wondering if anybody else has any good resources. Also, did/does everyone use premade food from either gerber or beechnut. There are some reasonably priced organic brands now. Should I risk it or stick to the familiar ones where the galactose contents have already been tested-even though that data is from 2000. Am I stressing too much too early? Shyla is only 3 months old.
Thursday, September 25, 2008
Midwest?
Just wondering which states are we going to consider the midwest. I don't want to step on the feet of the MN group. I guess you can never have too many support groups.
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