Jewel Shop and Share

Hey all,

I got the info sheet for our Jewel Shop and Share fundraiser in the mail yesterday. We have three sets of dates planned to raise money. The first set of days is April 6-8, 2009. PGC will get 5% of all sales made those days by individuals who hand in and sign our identification slip with their purchase.

Who would like to pass out slips! Obviously I would wait until closer to the sale days to hand out the slips to friends and family, but I figured I could mail all of you a copy of the slip now and you could make as many copies as you want. Does everyone have access to a xerox machine? For those of you who don't I ordered 300 already printed slips but they will not be available until 3/16/3009. What do you think would be the best way to distribute slips to the members of this group?

Also, I got a sample press release format for anyone who would like to advertise this fundraiser in their schools, churches, local newspapers, etc. Let me know if you want that.

AND, the check will be mailed to me, but it will be made out to PGC. I will then send it to PGC with a request for certain monies to be returned to our splinter group. Does that sound ok?

I have never chaired a fundraiser before so any suggestions on how to move forward are welcome!

Research Study

Hi everyone! I hope all is well! Where is everyone anyway? busy busy busy time of the year! I just wanted to let you know Grant participated in Dr. Judy's study this month. At his normal appointment with Dr. Hoganson we took a little extra blood (the same stick---only one time) and overnighted it to Dr. Judy at Emory in Atlanta. If we want research done we are going to have to provide blood and info. to Doctors willilng to do the research. If you want more info on the study or how to be involved please talk to me or I'll give you Dr. Judy's info. Thanks!!! Denise

HI everyone--we are trying to get a fundraising meeting going. Several people can meet this Sat. (Nov. 15) at Nish's place in Lisle. If you would like to be part of the meeting, but can't attend (because you live to far or whatever) let us know by responding to this post. If we don't have enough interest we will make another plan for later. Let us know what you think!

Mabel's Labels

From my email:

Hey all!

My wife's cousin gave me this idea. We could sell items from Mabel's Labels for a fundraiser. It seems very appropriate. I know we could use some of these items ourselves! I particularily like the idea of the paperless option. It allows for everyone to participate from there own "base of operations". I attached their fundraising guide. Let me know what you all think... I'll put this on the blog so everyone can comment.

Nile

This is the website:
http://www.mabel.ca/

A few people asked for the written information we used for fundraising. Here are some examples of what I used at the fall festival when I was selling jewelry. I printed this and put it on the tables with the jewelry so people could read it. Of course I had a huge sign, too. I also have a simple power point I did for the chamber of commerce and Rotary Club last summer when I did a silent auction. e-mail me directly if you want that and I will try to send it to you.

WHAT IS GALACTOSEMIA?
Galactosemia is a rare Genetic disorder affecting about 1/60,000 people. Galactosemia can cause liver/kidney damage, cataracts/blindness, mental retardation, severe learning disabilities, speech issues, tremors and other central nervous system problems. There is NO TREATMENT for Galactosemia other than a restricted diet. Restricting the diet helps with some problems, but does not seem to positively affect several central nervous system issues. Research is needed and EXTREMELY UNDER FUNDED!!!! Galactosemia is considered an ORPHANED DISEASE; meaning there is little funding, government or otherwise. It is up to the parents to raise funds!

Grant Michael Wilburn is a Wilmington resident born in January of 2007. Grant has Classical Galactosemia. Grant is doing well, but research is needed to help him continue to thrive. All proceeds will benefit research, education and support of families dealing with Galactosemia. These donations are NOT for Grant’s direct medical care.

ANNUAL FUNDRAISER IDEAS

Please post any suggestions for our super-duper big annual fundraiser for PGC Midwest here!

facebook group

Hi all,

I was doing a search on facebook for galactosemia groups and I came across a group called "For every 100 members I will donate a $1 to galactosemia research". I think this is the link and I am not sure if you have to be a member on facebook to join, but it is obviously for a good cause. GANES is the group sponsor I believe. Every dollar counts, right!


http://www.facebook.com/profile.php?id=697665983&ref=profile#/group.php?gid=31715744050&ref=mf