Monday, December 15, 2008

Facebook Group

Ok... I caved in and started on Facebook. I created a group for us there. Just look up Parents of Galactosemic Children Midwest. :)

Sunday, December 14, 2008

Jewel Shop and Share

Hey all,

I got the info sheet for our Jewel Shop and Share fundraiser in the mail yesterday. We have three sets of dates planned to raise money. The first set of days is April 6-8, 2009. PGC will get 5% of all sales made those days by individuals who hand in and sign our identification slip with their purchase.

Who would like to pass out slips! Obviously I would wait until closer to the sale days to hand out the slips to friends and family, but I figured I could mail all of you a copy of the slip now and you could make as many copies as you want. Does everyone have access to a xerox machine? For those of you who don't I ordered 300 already printed slips but they will not be available until 3/16/3009. What do you think would be the best way to distribute slips to the members of this group?

Also, I got a sample press release format for anyone who would like to advertise this fundraiser in their schools, churches, local newspapers, etc. Let me know if you want that.

AND, the check will be mailed to me, but it will be made out to PGC. I will then send it to PGC with a request for certain monies to be returned to our splinter group. Does that sound ok?

I have never chaired a fundraiser before so any suggestions on how to move forward are welcome!

Friday, December 12, 2008

Research Study

Hi everyone! I hope all is well! Where is everyone anyway? busy busy busy time of the year! I just wanted to let you know Grant participated in Dr. Judy's study this month. At his normal appointment with Dr. Hoganson we took a little extra blood (the same stick---only one time) and overnighted it to Dr. Judy at Emory in Atlanta. If we want research done we are going to have to provide blood and info. to Doctors willilng to do the research. If you want more info on the study or how to be involved please talk to me or I'll give you Dr. Judy's info. Thanks!!! Denise